HYBRID EVENT!
DATE: 30th of May 2024
TIME: 09:15 – 15:00 CEST
ON-SITE: Marie-Elisabeth Belpaire building, Flemish Government (Bd Simon Bolivar 17, 1000 Bruxelles, Belgium)
ONLINE: information will be sent after registration before the event
The European Parliament has just adopted the European Health Data Space (EHDS), a key pillar of the European Health Union. The agreement reached is of utmost importance for better healthcare for citizens, for transformative data-driven research and innovation and the development of a more personalised medicine.
Understanding this groundbreaking regulation and the health data scenario it will open is crucial for researchers, innovators, patients, policymakers and society. To this end, Biocat, ScanBalt, the Council of European BioRegions and Health Cluster Portugal, the EDAH project consortium, and with the support of the Flemish Government, Sciensano and SITRA, organise a conference “EHDS, for a data-driven health innovation” in the framework of the Belgium Presidency of the Council of the European Union.
The activity will be a side event of the high-level Conference on Personalised Medicine -organised by the Flemish Government and taking place on the 28th and 29th of May. It will update the state of the EHDS, connecting it to EU-wide initiatives like TEHDAS, EP Permed or 1 Million Genomes. It will discuss scenarios of implementation of EHDS with examples and good practices at the Member State or Regional level, highlighting opportunities for advancing personalised treatments in both public and private research areas.
The panelists are top representatives of European Institutions, industry, academia, healthcare and policymaking. We invite you to join the event and the discussion with leading experts in the field to explore the challenges and opportunities of the EHDS.
The event is organised as a hybrid event and the online participation information will be sent after registration before the event.
Join us to discuss relevant aspects of the European Health Data Space (EHDS) regarding the secondary use of data and personalised medicine for the European ecosystems!
PROGRAM
08:45 – 09:15 Coffee & Registration
09:15 – 09:20 Welcome & Introduction by Montse Daban and Jaanus Pikani
09:20 – 10:00 Keynote: EHDS – Catalyzing data for Health Innovation (Elina Drakvik, Senior Lead at Finnish Innovation Fund SITRA)
10.00 – 11:00 Session I- Best practice Sharing
The session will explore initiatives, projects and networks on health data use to inspire other regions, member states and networks in their data space challenges.
- MODERATOR: Montse Daban, Director of Science Policy and Internationalisation at Biocat
- Salvador Capella, INB Team Lead at Barcelona Supercomputing Center
- Andres Metspalu, Professor at University of Tartu
- Joaquim Cunha, Executive Director at Health Cluster Portugal
11.00 – 11:30 Networking Coffee
11:30 – 11:45 Keynote presentation: Kathleen D’Hondt, Policy Advisor Department Economy, Science and Innovation at Flemish Government
11:45 – 12:30 Session II- Unlocking the Potential
This session will be dedicated to the implementation of the EHDS. Implementation is multidimensional; common policies need to be aligned with and need to be complementary to the EHDS, the digital transformation and the appropriate technical infrastructures are a key requirement for participating in the EHDS. Finally, all stakeholders in the health system need to be mobilised in order to ensure optimal implementation and early buy-in.
- MODERATOR: Nienke Schutte, Head of EU Health Information System Unit at Sciensano
- Michel Silvestri, Head of Unit at the Coordination Department at the Swedish eHealth Agency
- Michele Calabro, Director at EUREGHA
- Jaanika Merilo (TBC), Head of eHealth Strategy at Ministry of Social Affairs
- Mario Jendrossek (TBC), European and International Affairs Director at Health Data Hub
12.30 – 13:30 Session III – ScanBalt Declaration
Since 2019, ScanBalt has followed the EHDS development process by formulating declarations based on the feedback collected from stakeholders. Now, that the European Parliament has approved the EHDS regulation, we have collecting another round of feedback in the framework of EDAH project. The results results of this survey together with the highlights of the EIT Health’s Think Tank report, “Implementing the European Health Data Space across Europe” will be presented and discussed at the session.
- MODERATOR: Jaanus Pikani, Chairman at ScanBalt
- Rabea Knorr, Head of Department Industrial Health at Sphin-X
- Ernst Martin Walsken, President at Dig-In-Health
- Jean-Marc Bourez, CEO at EIT Health
- Leander Vranken, Senior Policy Officer at EUCOPE
- Aneta Tyszkiewicz, Director Digital and Data at EFPIA
- Jan-Philip Beck, Partner at Vintura
13:30 – 13:45 Key takeaways
13:45 – 13:50 Closing
13:50 – 15:00 Networking time!
INVITATION TO PROVIDE FEEDBACK ON THE European Health Data Space (EHDS): Your input matters!
Since 2019, ScanBalt has followed the EHDS development process by formulating two declarations based on the feedback collected from stakeholders and submitted to the German and French governments during their recent EU presidencies. Now, that the European Parliament has approved the EHDS regulation, we together with the EU-funded project EDAH are collecting another round of feedback from key stakeholders.
Your insights as a key stakeholder are invaluable in ensuring that the EHDS and its implementation will be comprehensive and reflective of the diverse needs and perspectives within our community. We kindly request your participation in a brief survey to rate the issues outlined in the EHDS draft and assess their relevance to your organisation. Filling out the survey takes about 10-15 minutes. We ask you to rate the topics and their relevance to your organisation.
The individual assessments will be compiled into a summary that together with the declaration draft formulated based on the summary will be presented at the conference “EHDS – for data-driven health transformation”.
Consequently, the joint declaration will be published and shared with policymakers as a reference to position papers and support for implementing the EHDS.
Don’t miss the opportunity to contribute to a healthier, more innovative future for health in Europe!
We look forward to your input by 15 May 2024!
